Wednesday, 29 August 2012

September 2012 Home Teaching Message Handout

this idea comes from The idea door


this idea comes from The idea door

Wednesday, 4 July 2012

Summer Photography Challenge

Part of this summers activities with my teens is our Photography challenge.  Every day we take a look at the lists and choose one of the challenges




We pick our favourite photo print it and hang it on our home made photo mobile.
I found this article and just had to make a copy of it and try it out however I forgot to take a note of where I origionally got it to put a link so if its your idea please contact me so I can give proper due to this great article.

Want to make one of your own? Here’s how:
Supplies:
·         4 – 1/4″ square balsa wood sticks, cut to 18″ each
·         superglue
·         silver spray paint
·         thin ribbon
·         32 tiny clothespins
Directions:

To start, cross two pieces of balsa wood and glue them together (with 90-degree angles where they intersect). Repeat with the remaining two pieces. Position the two crosses on top of each other, form 45-degree angles between each piece. Glue in place.
Cover completely with spray paint (we used Krylon Shortcuts).

We started with 31 pieces of 24″ ribbon so that we could cut them to length once it was assembled. But since we’ve already done it, I can tell you what lengths we used.
·         (8) 12″ ribbons, at the tip of each stick
·         (8) 8″ ribbons, 2-2/3″ from the end
·         (8) 16″ ribbons, 5-1/3″ from the end
·         (4) 4″ ribbons, 8″ from the end {every other stick}
·         (2) 20″ ribbons, 8″ from the end {on the sticks you skipped for the 4″ ribbons, leaving two empty}
·         (1) 10″ ribbon, in the center
Attach the ribbons along each stick, starting at the end and spacing them every 2-2/3″. (We alternated the ribbon on each side of the stick to make it more balanced, but you could do them all on the same side.)
Attach four long pieces of ribbon to hang the mobile by. The length of these will depend on where, and how low, you want it to hang.
Glue a clothespin to the end of each ribbon.
I had two copies of each picture printed, and then I cut them down to 4″x4″ and used double-sided tape to stick them together. Or, if you have more pictures to showcase, you could tape different pictures together instead.
The great news is you can change the pictures as often as you’d like!
And the best part is it makes a permanent keepsake that you can use as part of your home decor even after the party!



Tuesday, 3 July 2012

Operation Nice Hits Irvine Library


         

     

   
   
    
    
     
 


Hanna Returns from here 2nd year Arran Trip

After a week of fishing, absailing, swimming, wall climbing, and loads of other fun it was time to come home.  We put together a wee suprise..... can you tell we missed her.  I think she can tell - as well as the rest of her school - she was mortified but couldn't get the smile of her face.




WELCOME HOME HANNA     WE LOVE YOU!

Summer is Officially Here In Scotland .... Honestly

We had to work a little hard to convince the children it was summer due to the amount of rain and flood warnings we've been getting however a 6ft banner across the living room wall gave the atmosphere a much more summery feeling

We even got a little exercise literally "Jump starting Summer 2012" instead of jumping of some outside sun drenched bench in the middle of the park or by the beach we did the next best thing ... of the sofa



Wednesday, 27 June 2012

Home Teaching Message Handouts for July 2012

This months first presidency message is Always in the Middle by President Dieter F Uchtdorf  handout ideas. 
This idea comes from didi@relief Society
This idea comes from The Idea Door



Wednesday, 13 June 2012

The Girl in a Whirl - just had to share

The Girl in a Whirl
by 'Dr. Sue'
(a.k.a. Vickie Gunther)

Look at me, look at me, look at me now!
... You could do what I do
If you only knew how.
I study the scriptures one hour each day; I bake, I upholster, I
scrub, and I pray.
I always keep all the commandments completely; I speak to my little
ones gently and sweetly.
I help in their classrooms!
I sew all they wear!
I drive them to practice!
I cut all their hair!
I memorize names of the General Authorities; I focus on things to
be done by priorities.
I play the piano!
I bless with my talents!
My toilets all sparkle!
My checkbooks all balance!
Each week every child gets a one-on-one date; I attend all my
meetings (on time! Never late!)
I'm taking a class on the teachings of Paul,
But that is not all! Oh, no. That is not all .
I track my bad habits 'til each is abolished; Our t-shirts are
ironed!
My toenails are polished!
Our family home evenings are always delightful; The lessons I give
are both fun and insightful.
I do genealogy faithfully, too.
It's easy to do all the things that I do!
I rise each day early, refreshed and awake; I know all the names of
each youth in my stake!
I read to my children!
I help all my neighbors!
I bless the community, too, with my labors.
I exercise and I cook menus gourmet; My visiting teaching is done
the first day!
(I also go do it for someone who missed hers.
It's the least I can do for my cherished ward sisters.) I chart
resolutions and check off each goal; I seek each "lost lamb" on my
Primary roll.
I can home-grown produce each summer and fall.
But that is not all! Oh, no. That is not all .
I write in my journal!
I sing in the choir!
Each day, I write "thank you's" to those I admire.
My sons were all Eagles when they were fourteen!
My kids get straight A's!
And their bedrooms are clean!
I have a home business to help make some money; I always look
beautifully groomed for my honey.
I go to the temple at least once a week; I change the car's tires!
I fix the sink's leak!
I grind my own wheat and I bake all our bread; I have all our meals
planned out six months ahead.
I make sure I rotate our two-years' supply; My shopping for
Christmas is done by July!
These things are not hard;
'tis good if you do them;
You can if you try!
Just set goals and pursue them!
It's easy to do all the things that I do!
If you plan and work smart, you can do them all, too!
It's easy!" she said
and then she dropped dead.




I laughed so hard at this - just had to share x

Summer Fitness Challenge

I don't know about you but I need real motivation to do any form of exercise.  However this summer I'm going to attempt the.....


Bronze Level


Cat's 2012 Summer Fitness Challenge!!
I hope you are one of those people who are as excited about this as I am! I love, love, LOVE the summer challenges!! Now, back for the 3rd summer is Cat's Summer Fitness Challenge!

Photobucket
This year I am going to change things up a bit. Don't worry, for those of you who like the 120 mile challenge, things pretty much can stay the same. What I want to do is add 2 more levels to the challengers who want to take on a bigger load.

So dust off those running shoes! Here is the 411 on the NEW Summer Challenge:

120 Mile Challenge: This is going to be the Bronze Challenge. For those of you who just want to get out this summer and get active.

170 Mile Challenge: This it the Silver Challenge, for our seasoned challengers who want to step it up from last year, push a little harder.

220 Mile Challenge: The Gold Challenge! This is for the over achievers who are especially training for races who get in several miles per day.

Rules and Information:

Starts: June 1st
Ends: Aug 31st

Goal: Exercise 120, 170, or 220 miles in 3 months!!


Rules: You can walk, run, elliptical, bike, or Swim (NEW this year) to count your miles. HOWEVER, since it is easier and faster to BIKE, you can only count 1 mile for every 3 miles you bike. So say you do 6 miles on your stationary bike, you can only count 2 of those miles toward your goal. And Swimming can be a little more time consuming and it's a full body workout, so for every 1/2 mile swam you can count it as 1 mile toward your goal.

Miles only count if they are consecutively earned. So you can't just strap on your pedometer and count your steps throughout the day and say you walked 10 miles or whatever. This is a challenge! That means you can only count miles when you set out to burn fat and calories and get in shape!

ANYONE can join!

This is not a contest. Just a challenge for YOU! Something to get you off your butt this summer, to do something good for your body.

What's in it for you? Well, not only will you get in shape, meet fitness goals, and feel good about yourself, BUT you will also have a chance to win some prizes!

How to Join: Just email me at nutsinanutshell(at)gmail(dot)com, your name and give me the name you would like to be called on your updates, your email address, and your blog address if you have one that you would like linked to your stats (optional). If you have any questions, please make sure you read through this whole post... and if you still can't find your answer then PLEASE email me! I tend to forget stuff once in a while....

How this Works: Every Thursday you will report your miles to me at my email address above. I will send out reminders too (If I remember). Then on Friday I will post how everyone is doing. That's it!!

Friday, 25 May 2012

End of Year Graduation from Girls Brigade

Hanna (back row 3rd in) Graduated from Girls Brigade gaining her white award and 1 year service badges and certificate for perfect attendance and church attendance.

Sean was ambushed into playing the parents game arranged by the brigaders

Gran and Papa Soden came along to see Hanna's Graduation as well.
WE ARE REALLY PROUD OF YOU!

June 2012 Home Teaching Message and Handout

This month's Message for Home Teachers is Called of God and Sustained by the People  by President Henry B Eyring, 1st Counsellor of the First Presidency.


This idea comes from The Idea Door


This idea comes from The Idea Door
This idea comes from Didi@Relief Society

Monday, 30 April 2012

5 of my favourite blogs

1.   spiritually speaking
2.   tip junkie
3.   lds.org
4.   one pretty thing
5.   dating divas

What are your favourite Blogs?

Wednesday, 25 April 2012

Exam Cram Gift Basket

Brienna from darling doodles had an article today with this Exam Cram Gift Basket which I'm going to do for Ruth and just had to share so nip over to her site and you can get the little printable she has


Ideas for items to put in this basket are:
  • Pens
  • Pencils
  • Highlighters
  • Index Cards
  • Post it Notes
  • Reference books
  • Mug, Thermos, or Waterbottle
  • Snacks
  • Headache Medicine
  • Notebook or Paper
  • And something fun for when they need to take a break

Teacher Appreciation

It is fast getting to the end of another school/club year and I'm thinking of ways in which to help my children show thier appreciation for thier teachers and leaders (within a very tight budget) and here is what we have come up with.

We gathered smooth pebbles from our local beech scrubbed them down and used permenant markers to make these paperweights as cheap momentos of our appreciation  This idea came from blackberryvine


 This printout  is origionally for a itunes gift card however we used it to write a wee personal message to go along with the paper weight.  It comes from Crafting is contagious

Missionary Letters

Following family council we as a family are trying to support our missionarys not only those who are serving in our ward but the missionarys serving from our ward.  We have 4 missionarys and a missionary couple away at the moment.  We decided we had to write to each of the missionarys. 

 Now I don't know about you but after three sentances I usually run out of new or interesting storys to share so we decided to do a newsletter. In it we would include
  • Peden Family News
  • a Scripture of the Month
  • a story of the month
  • Quote of the month
  • Ward News
  • Tips for scripture Study
  • Object Lesson Idea
  • Scottish recipe for some homemade goodies
  • missionary cartoon


Family Council Revamp

This week sean and I decided it would be a good idea to revamp family council to be more effective for the family rather than the usual negotiations over chores and bedtimes so after a little research we've came up with

The Four Fold Mission of the Peden Family

The 4 areas we concentrate on in family council are
  • Family History
  • Missionary Work
  • Personal and Family Preparation
  • Education and Activities
We reviewed what the family was doing with regard to the above list and set personal and family goals
Heres our minues to give you an idea of what we discussed

Family Council

Date__________SUNDAY THE 15th of April 2012 ________________________________________

Conducting:__________Dad_______________________________________________________________

Opening Song:_______I have a Family Here on earth (Hanna Conducting)______

Scripture/Spiritual Thought:______D&C 6 1-2 (Dad)_______________________________

Opening Prayer:-_______Mum__________________________________________________________

Calender Review

·         Ruth – Family Home Evening for Monday
·         Ruth & Hanna need to gather evidence for personal progress and duke of Edinburgh award on eco committee and photography
·         Ruth to go to Gold and Green Ball on Friday with mum and Dad
Today is mum and dads 18th year anniversary of their engagement.

4 Fold Mission of the Peden Family

Family History:                                                     

Review:__On recent visit to Temple Ruth and Hanna Completed 40 Baptisms and 50 confirmations_________________________________________________________

            Goals:___For next Youth trip we aim to prepare 32 names for temple work Hanna 2, Adam 3, Ruth 7, Dad 10 and Mum 10________________________________________

Missionary Work:                                                

Review:___Sean went out with the missionaries once this week, girls did temple work _____________________________________________________________________________

            Goals:__ Sean to try and go on teaches with missionaries twice a week, Ruth, Hanna and Adam are to invite friends to church activities, mum to invite sisters for dinner appointment and Plan an Operations Nice/Secret Service.

 Personal & Family Preparation:                     

Review:______Chores needing an over haul____________________________________

Goals:__________Ruth _ Upstairs Bathroom and Gathering dirty dishes and washing them. Hanna – Hoovering and downstairs Bathroom.  Adam – Dirty washing and Bins, Mum & Dad responsible for Breakfast  and walk and feed dog.

Education & Activities:                                       

Review:_________________________________________________________________________________________________________________________________________________________________________

Goals:____Thinking of ideas for summer Staycation, Ruths study schedule to start again and when on study leave to stay with granny.

Testimonys:________________Mum, Dad and Ruth._____________________________________

Time for Next Meeting:___________Next Sunday___________________

Closing Song: ______The Spirit of God ( Conducted by Ruth)_____________________

Closing Prayer: _____Adam_____________________________________________________________

Hugs and Kisses and Food


Saturday, 24 March 2012

Brain Tumour Chemotherapy week 2-3

After the initial 10 days of chemotherapy sean started 32 days of rest.  We are settled into a routine at home and trying to enjoy life at a healthy pace.  Sean loves getting out the house for a few hours for a good walk/hike.  Spending time doing a drawing challenge and generally getting things done around the house.  Will update when we have more news. 

Tuesday, 13 March 2012

Brain Tumour Chemotherapy Cycle 1 Week 1

Your probably wondering why we are putting these personal updates on the blog so anyone can read them and that's the point any one can read them and hopefully find comfort and strength for their own journeys.  It also helps me possess all the information so it fits into place and keeps an accurate diary to keep track of dates, medicines, side effects and positive uplifting thoughts.  Sean has no interest or stamina for all the detail and this blog update helps me keep all the information at my fingertips.  It also explains to friends and family what we are going through so I don't have to...... which is probably the most draining challenge we have had to date.

Tuesday 6th March
We headed to The Beatson for the first time to meet our new oncology consultant and get to grips with our new chemotherapy regime.  The plan is 6 cycles of chemo which will last 9 months with MRI checks every 2 cycles.
Glasgow is now home to the UK’s most advanced NHS cancer centre. The new Beatson West of Scotland Cancer Centre

PCV chemotherapy

This information is about a chemotherapy| treatment for brain tumours| called PCV.             

The drugs used           

PCV is named after the initials of the chemotherapy drugs used, which are:
In our circumstances we are not getting the Vincristine

How treatment is given           

PCV chemotherapy can usually be given to you as a day patient. Before you start treatment, you'll need to have a blood test on the same day or a few days before. You'll also be seen by a doctor, specialist nurse or pharmacist. If the results of your blood test are normal, the pharmacy will prepare your chemotherapy drugs|. All of this may take a couple of hours.
                         
  Along with your your chemotherapy you'll be given an anti-sickness (anti-emetic) drug in tablet form.

You will then be given the
  •               lomustine capsules, which are blue in colour
  • procarbazine capsules, which are ivory in colour.
  • Lactulose - a syrup to prevent or reduce constipation
The lomustine and procarbazine capsules should be swallowed whole with a glass of water. Sometimes you'll be given the lomustine and procarbazine capsules to take at home. WE DID.

 You may be given anti-sickness tablets to take with you. It's important to take the anti-sickness tablets regularly, even if you aren't feeling sick. This is because most anti-sickness tablets are more effective at preventing sickness than at stopping it once it has started.

How often treatment is given           

Your doctor may use the word 'regimen|' (eg the PCV regimen) when talking about your chemotherapy. This refers to the whole plan or schedule of the treatment that you are receiving.

On the first day of your treatment you'll be given  a dose of lomustine capsules. You'll also begin a 10-day course of procarbazine capsules, which may start on the following day. When you have completed the procarbazine capsules, you'll have a rest period with no treatment for the next 32 days. This completes what is called a cycle of your treatment. Each cycle lasts for 42 days (six weeks).

The course of procarbazine capsules can vary from hospital to hospital and may be more or less than 10 days. Your doctor, nurse or pharmacist will explain exactly how many days you need to take the procarbazine for and how many days rest you'll have.
After the rest period the same treatment will be repeated, which will be six weeks after your first  medication.  This begins the next cycle of your chemotherapy. Usually two or three cycles are given, then the treatment is reviewed.

Possible side effects           

Each person’s reaction to chemotherapy is different. Some people have very few side effects while others may experience more. The side effects described here won't affect everyone who has PCV chemotherapy.
We have outlined the most common side effects but haven't included those that are rare and unlikely to affect you. If you notice any effects that aren't listed here, discuss them with your doctor, chemotherapy nurse or pharmacist.

Risk of infection

PCV chemotherapy can reduce the number of white blood cells, which help fight infection. White blood cells are produced by the bone marrow|. If the number of your white blood cells is low you'll be more prone to infections|. A low white blood cell count is called neutropenia.
Neutropenia can begin three weeks after treatment, and your resistance to infection usually reaches its lowest point 4–6 weeks after chemotherapy. The number of white cells in your blood then increases steadily and usually returns to normal before your next cycle of chemotherapy is due.

Contact your doctor or the hospital straight away if:

your temperature goes above 38°C (100.5°F)

you suddenly feel unwell even with a normal temperature.
    You'll have a blood test before having more chemotherapy, to check the number of white blood cells in your blood. Occasionally, it may be necessary to delay your treatment if the number of your blood cells (blood count) is still low.

    Bruising and bleeding

    PCV can reduce the production of platelets, which help the blood to clot. Tell your doctor if you have any unexplained bruising or bleeding, such as nosebleeds, bleeding gums, blood spots or rashes on the skin. You may need to have a platelet transfusion| if your platelet count is low.

    Anaemia

    PCV can reduce the number of red blood cells, which carry oxygen around the body. A low red blood cell count is called anaemia. This may make you feel tired and breathless. Tell your doctor or nurse if you have these symptoms. You may need to have a blood transfusion| if the number of red blood cells becomes too low.

    Feeling sick (nausea) and being sick (vomiting)

    This may begin soon after the treatment is given and can last for a few days. Your doctor can prescribe very effective anti-sickness (anti-emetic) drugs to prevent or greatly reduce nausea and vomiting|. If the sickness isn't controlled, or if it continues, tell your doctor; they can prescribe other anti-sickness drugs that may be more effective.
    Some anti-sickness drugs can cause constipation|. Let your doctor or nurse know if this is a problem.

    Tiredness (fatigue)

    Feeling tired| is a common side effect of chemotherapy, especially towards the end of treatment and for some weeks after it’s over. It’s important to try to pace yourself and get as much rest as you need. Try to balance this with some gentle exercise, such as short walks, which will help. If tiredness is making you feel sleepy, don’t drive or operate machinery.

    Numbness or tingling in hands or feet

    This is due to the effect of vincristine and procarbazine on the nerves and is known as peripheral neuropathy|. Tell your doctor if you notice these symptoms or have difficulty carrying out fiddly tasks, such as doing up buttons. This problem usually improves slowly a few months after the treatment has finished. Sometimes these symptoms can persist; tell your doctor if this happens.
    Very rarely, other nerves may be affected, such as the neck nerves. This may cause pain in the jaw or double vision.

    Flu-like symptoms

    You may develop flu-like symptoms a few hours after the treatment has been given. These include headaches, aching joints or muscles, a temperature, lack of energy (lethargy) and chills. If this happens, it's important to drink plenty of fluids and get some rest. If these symptoms continue for more than a day contact your doctor.

    Less common side effects           

    Hair thinning

    This is rare. If it happens, it usually begins 3–4 weeks after starting treatment, although it can occur earlier.

    Skin changes

    Procarbazine can cause a rash, which may be itchy. Your doctor can prescribe medicine to help with this. Your skin may darken due to the excess production of pigment. It usually returns to normal a few months after the treatment has finished.

    Changes to the lungs

    Lomustine may cause some changes to the lungs|. Tell your doctor if you smoke or if you notice any coughing or breathlessness|.

    Diet

    Rarely, procarbazine may interact with certain drinks and foods causing sickness, headaches, sweating, drowsiness and breathing problems. You may need to avoid red wine, alcohol and alcohol-free beers, mature cheeses, certain meats (salami, pepperoni) and yeast or beef extracts (OXO®, Bovril® and Marmite®). Your nurse or doctor will give you more advice on which foods to avoid.

    Eyesight

    Lomustine may affect your eyesight, however this is very rare. Let your doctor know if you notice any change in your vision.
    It’s important to let your doctor know straight away if you feel unwell or have any severe side effects, even if they’re not mentioned above.                     

    Additional information             

    Risk of developing a blood clot

    Cancer can increase the risk of developing a blood clot (thrombosis), and chemotherapy may increase this risk further.
    A blood clot may cause symptoms such as pain, redness and swelling in a leg, or breathlessness and chest pain. Blood clots can be very serious, so it’s important to tell your doctor straight away if you notice any of these symptoms. Most clots can be treated with drugs that thin the blood. The doctor or nurse can give you more information.

    Other medicines

    Some medicines, including those you can buy in a shop or chemist, can be harmful to take when you're having chemotherapy. Tell your doctor about any medicines you're taking, including over-the-counter drugs, complementary therapies| and herbal drugs|.

    Fertility

    Your ability to become pregnant or father a child may be affected by taking this drug. For men, it may be possible to organise sperm banking prior to treatment. It's important to discuss fertility| with your doctor before starting treatment.

    Contraception

    It's not advisable to become pregnant or father a child while having PCV treatment, as it may harm the developing baby. It's important to use effective contraception while having this treatment and for at least a few months afterwards. You can discuss this with your doctor or nurse.
    It’s not known whether chemotherapy drugs can be present in semen or vaginal fluids. To protect your partner, it’s safest to either avoid sex or use a barrier form of contraception for about 48 hours after chemotherapy.

    Non-cancer admission

    If you’re admitted to hospital for a reason not related to the cancer, it’s important to tell the doctors and nurses looking after you that you're having chemotherapy treatment. You should tell them the name of your cancer specialist so that they can ask for advice.

    Emergency contacts

    It’s a good idea to know who you should contact if you have any problems or troublesome side effects when you’re at home. During office hours you can contact the clinic or ward where you had your treatment. Your chemotherapy nurse or doctor will tell you who to contact during the evening or at weekends.

    About procarbazine and lomustine capsules           

    It's important to take your capsules at the right times as directed by your doctor.

    Always tell any doctors treating you for any non-cancerous conditions that you're taking a course of chemotherapy tablets that shouldn't be stopped or restarted without the advice of your cancer specialist.

    Store the capsules in a dry place away from direct sunlight.

    Keep the capsules in a safe place and out of the reach of children.

    If your doctor decides to stop the treatment, return any remaining capsules to the pharmacist. Don't flush them down the toilet or throw them away.

    If you're sick just after taking the capsules, let your doctor or chemotherapy nurse know as you may need to take another dose.

    Don't take another capsule without telling your doctor or nurse first.

    If you forget to take a capsule, don't take a double dose. Tell your doctor or nurse and keep to your regular dose schedule.
       We were initially overwhelmed with the time table of medications however we set up our mobile phones to set of an alarm to remind us when to take medicines so it went of at 8am for the anti emetic, 8.30am for the chemo 10 am for the keppra for the epilepsy (a side effect of the tumor, and lactulose then again at 8pm for the anti emetic, and 10pm for the keppra.

      We took  lomustine in the evening 30 minutes  following the antiemetic called ONDANSETRON 8mg then settled down for the evening no side effects noted.

      Wednesday 7th March 2012

      Woke up with a large cold sore on top lip.  Started to take procarbazine this morning again 30 minutes following anti emetic again no side effects noted.  We had made contact with a charitable organization called Headway.


      The Headway Helpline provides information, advises on sources of support, finds local rehabilitation services and offers a listening ear to those experiencing problems

      We publish a range of booklets containing information about aspects of brain injury that will be helpful to those directly affected, plus professionals, employers and members of the public

      We promote understanding of brain injury and its effects

       We lobby for better support and resources to be made available by statutory health and social care providers

      We campaign for measures that will reduce the number of brain injuries

       Unfortunately funding for North Ayrshire has been withdrawn so we are only able to get information however Sean volunteered his services as a befriender and to participate in a support group in the East Ayrshire.  We are still waiting to hear if they can use Sean.  He just wants to be useful while off of work.  Not really able to concentrate for long periods.  Slept well.

      Thursday 8th of March 2012

      Day 2 of procarbazine Sean very tired now cat napping during day.  Felt better after went out of the house.  Went to a Brain Tumour Support Group in Kilmarnock based at Ayrshire Cancer Support.

      Welcome To Ayrshire Cancer Support
      Ayrshire Cancer Support has operated in Ayrshire since 1982 providing emotional support and practical help for cancer patients, their families, carers and the bereaved. Our aim is to ensure that help is readily available for everyone who needs it.

      We were made to feel very welcome and believe it or not we participated and really felt the benefit of talking to other people going through the same experience and how they handle it.  Especially those who were through the worst of it and making it in ordinary lives.

      They referred us to some websites which we have looked into and found very useful

      http://www.astrofund.org.uk/

      ASTRO FUND IS THE ONLY UK CHARITY TO FOCUS PURELY ON LOW-GRADE GLIOMAS

      We are working to find a cure for low-grade astrocytoma, oligodendroglioma, oligoastrocytoma and ependymoma brain tumours by raising money to support low-grade glioma research projects at the most innovative neuro-oncology research centres in the UK.
      We also offer information, inspiration and support to help patients, carers, friends and relatives through the challenges of living with a slow growing brain tumour. Our on line support group includes over 250 people from all over the world, and is renowned for its welcoming, encouraging and well informed members who can expand upon all the information contained in this website.

        

      Welcome to Turn2us

      We are a charitable service which helps people access the money available to them – through welfare benefits, grants and other help.
      Our free, accessible website has been designed to help you find appropriate sources of financial support, quickly and easily, based on your particular needs and circumstances.


      http://www.carersuk.org/

      Carers UK is a charity set up to help the millions of people who care for family or friends



      We help carers get the best for the person they care for make the most of their income
      stay in paid work keep healthy get in touch with other carers for support
      find a listening ear campaign for change.

      They also told us we could get a free  bus pass for Sean  as he had to bylaw hand over his driving licence due to his epilepsy.  On further investigation we called Strathclyde Passenger Transport on 0141 333 3211
      they explained that we needed to go in in person to either themselves in Glasgow or our local Social Work department for the form for a National entitlement Card, they however were going to send us out another form to be filled out by one of our doctors,  we are to take that completed form, a utility bill and a passport photo to the social work department and they would take care of it from there. 2-3 week we will have a concessionary ticket to travel the length and breadth of Scotland


       Later Sean started complaining of bloatedness, abdominal discomfort and constipation which left him generally restless,  eased with a hot water bottle.  Slept well.

      Friday 9th of March 2012

      Day 3 of procarbazine last day of anti emetic ONDANSETRON 8mg will be changing to DOMPERIDONE 10MG TO BE TWO TABLETS TO BE TAKEN  THREE TIMES A DAY WHEN REQUIRED this evening.  Sean was feeling much better today now sees the wisdom of lactulose ( he wasn't that convinced it would help at the beginning)


      Sean has developed a spotty rash behind his ear which is causing him to scratch and itch will get some calamine lotion tomorrow to see if it will take the heat and itch out of it.  Took a photo so I could see if it has improved or worse tomorrow.


      OK So it doesn't look bad with the flash actually it wasn't that bad but we still needed to get it checked out











      Saturday 10th of March 2012

      Well the rash is worse now its covering the top parts of his arms front and back torso neck and face so we had to give the out of hours doctors a call to get it checked out.  They recommended that a low immune patient comes into the out of hours clinic with all the bugs, couffs and sniffles..... just wonderful.... and that was after waiting 2 hours for first, one phone call for the nurse to phone back and then another with an appointmaent time and location for the clinic. 

      We were exhausted after trailing about trying to find a chemist that remained open however we got there in the end. We popped into some phone shops to see if we could find a phone that will help sean with his memory.. to remind him of appointments, medicines and to do lists.  We have decided to give the Samsung Galaxy y  a go.

      Sean now has had more blood taken, anti histamines and calamine lotion.  Need Sleep both of us!

      Sunday 11th of March 2012

      Seans napping on a fairly regular basis now every time he sits down within a few minutes hes asleep but I suppose thats for the best. He's trying to serve in his church callings to the best of his ability however he still feels that he can do more than he has the energy for.    The rest of the family are starting to feel the strain at the moment everyones exhausted its just that mad time of the year and snapping at each other I'm finding it harder to talk to people (about the kids and how they are coping)  without getting a little teary need to give my little collections another we review to help bring comfort..... I'll need to share some more... will soon when I have the time.

      Monday 12th of March 2012

      First day we haven't had to do anything or have any appointments  so we went shopping...for food and I did a lot of cleaning and sean alot of sleeping.

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